The International OCD Foundation is dedicated to providing resources for OCD and related disorders, including pediatric OCD. On our main website, iocdf.org, we provide many resources for adults affected by obsessive compulsive disorder. Many of the resources on iocdf.org (such as our events, membership, Resource Directory, etc.) will still apply, but we also know there are some issues specific to kids, teens, and families affected by OCD.
We asked many of the leading pediatric OCD clinicians and researchers in the United States — as well many individuals and families affected first hand by pediatric OCD — to help us put together information on this website. This site includes information for parents with kids or teens struggling with OCD as well as information written for kids. We also included important information for pediatric mental health and medical providers as well as school personnel.
This site will be continually updated with much more information to come, especially about how OCD affects children’s school functioning. We truly hope you find this new resource to be invaluable.
And thank you to our many contributors:
- Jeanne Fama, PhD
- Fred Penzel, PhD
- Eric A. Storch, PhD
- Aureen P. Wagner, PhD
- Tanya K. Murphy, MD
- Michele Pato, MD
- Evelyn Stewart, MD
- Barbara L. Van Noppen, PhD
- Kyle Williams, MD
- Susan Swedo, MD
About Our Contributors
Jeanne Fama, PhD, is a licensed clinical psychologist and the director of high risk and vulnerability research in the OCD and Related Disorders Program at Massachusetts General Hospital. She is a clinical assistant in psychology (psychiatry) at Massachusetts General Hospital and an instructor of psychiatry at Harvard Medical School. Dr. Fama completed her PhD in Clinical Psychology at Harvard University and her clinical internship at Massachusetts General Hospital/Harvard Medical School. She has received grants to pursue treatment-related, neuropsychological, cognitive, and family-related research in OCD, and has collaborated on several federally funded treatment projects. She has published on OCD-spectrum and anxiety disorders and serves on the Scientific Advisory Board to the International OCD Foundation. Dr. Fama also enjoys teaching psychology interns, postdoctoral fellows, and psychiatry residents in training at MGH as well as practitioners involved in the MGH Psychiatry Academy. She sees patients at MGH and in private practice.
Fred Penzel, PhD, is the executive director of Western Suffolk Psychological Services in Huntington, NY. Dr. Penzel is a licensed psychologist who has specialized in the treatment of OCD and trichotillomania since 1982. He is the executive director of Western Suffolk Psychological Services in Huntington, Long Island, New York, a private treatment group specializing in OCD related problems, anxiety disorders, and body-focused behaviors. He is a founding member of the IOCDF Scientific and Clinical Advisory Board. Dr. Penzel is the author of “Obsessive-Compulsive Disorders: A Complete Guide To Getting Well And Staying Well,” a self-help work covering OCD and spectrum disorders, as well as “The Hair Pulling Problem,” a self-help book dedicated exclusively to trichotillomania. Dr. Penzel has also a faculty member of the IOCDF’s Behavior Therapy Training Institute, and is a frequent contributor to the IOCDF newsletter.
Eric A. Storch, PhD, is Professor and All Children’s Hospital Guild Endowed Chair in the Departments of Pediatrics, Psychiatry and Behavioral Neurosciences, and Psychology at the University of South Florida. He serves as the Clinical Director of Rogers Behavioral Health – Tampa Bay and is the Director of Research for Developmental Pediatrics at All Children’s Hospital – Johns Hopkins Medicine. Dr. Storch has received multiple grants from the federal funding agencies, and has published 10 books and over 450 peer-reviewed articles and chapters. He specializes in the nature and treatment of childhood and adult obsessive-compulsive disorder and related conditions, anxiety disorders, and anxiety among youth with autism. Dr. Storch is the clinical director of the IOCDF’s Pediatric BTTI, and is a member of the IOCDF Scientific & Clinical Advisory Board.
Aureen P. Wagner, PhD, is adjunct associate professor at the University of North Carolina at Chapel Hill School of Medicine and director of the Anxiety Wellness Center in Cary, NC. Dr. Wagner specializes in CBT for childhood anxiety and is the author of several books including, “Up and Down the Worry Hill: A Children’s Book about Obsessive-Compulsive Disorder and its Treatment,” “What to do when your Child has Obsessive-Compulsive Disorder: Strategies and Solutions,” “Treatment of OCD in Children and Adolescents: A Professional’s Kit,” and “Worried No More: Help and Hope for Anxious Children.” Dr. Wagner is a member of the Scientific and Clinical Advisory Board of the IOCDF and a faculty member for the IOCDF’s Behavior Therapy Training Institute.
Tanya K. Murphy, MD, is a professor and the director of the Rothman Center for Pediatric Neuropsychiatry at the University of South Florida in St. Petersburg, FL. Dr. Murphy is board-certified in psychiatry and child psychiatry. She has received several major grants from the National Institute of Mental Health and has published more than 150 peer-reviewed papers. Her current research focuses on understanding the role of infections and the immune system in the onset of childhood psychiatric disorders and pharmacological and psychological treatments for Tourette’s syndrome and OCD. Dr. Murphy is also a member of the Scientific and Clinical Advisory Board of the IOCDF as well as a faculty member for the IOCDF’s Behavior Therapy Training Institute.
Michele Pato, MD, is a professor and the associate chair of education at the Keck School of Medicine at the University of Southern California in Los Angeles, CA. Dr. Pato is the principal investigator of the Genomic Psychiatry Cohort and recently received funding from the National Institutes of Health to include 5,000 individuals suffering from OCD. Dr. Pato is internationally known for her genetic research, OCD clinical research, and teaching. She is the co-director of the OCD Treatment and Research Program at Keck School of Medicine, USC. Dr. Pato is also a member of the Scientific and Clinical Advisory Board of the IOCDF as well as a faculty member for the IOCDF’s Behavior Therapy Training Institute.
S. Evelyn Stewart, MD, is an associate professor at the University of British Columbia and the founding director of the Pediatric OCD Clinic and Research Program at the BC Children and Women’s Health Centre in Vancouver, Canada. Dr. Stewart is a clinical, genetic, and neuroscience researcher, as well as a child and adult psychiatrist. Her research focuses on genomic, phenotypic, and treatment aspects of childhood-onset neuropsychiatric disorders, such as obsessive compulsive disorder (OCD). Dr. Stewart has authored over 50 original papers, reviews, and chapters on genetic, clinical, and treatment aspects of OCD, Tourette’s disorder, and related illnesses. She is also a member of the IOCDF Scientific and Clinical Advisory Board, a faculty member for the IOCDF’s Behavior Therapy Training Institute, and is the co-director of the International OCD Foundation Genetics Collaborative.
Susan Swedo, MD, is the chief of the Pediatrics & Developmental Neuropsychiatry Branch at the National Institute of Mental Health. Dr. Swedo’s research has focused on diagnosis and treatment of childhood neuropsychiatric conditions, including Sydenham’s chorea, Tourette syndrome, obsessive compulsive disorder (OCD), and autism spectrum disorders. Dr. Swedo and colleagues were the first to describe a post-infectious etiology for OCD and define criteria identifying the PANDAS subgroup (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections). Current research efforts are directed at identifying biological causes for behavioral syndromes and developing new and more effective therapies. Dr. Swedo is also a member of the IOCDF Scientific and Clinical Advisory Board.
Barbara L. Van Noppen, PhD, is an associate professor at the University of Southern California in Los Angeles, CA. Dr. Van Noppen is a specialist in cognitive behavioral therapy and family-based treatment. She also teaches and supervises in the residency training program at USC. Dr. Van Noppen is most well known for her contributions in OCD family treatment, particularly the development of a Multifamily Behavioral Treatment (MFBT), Family Accommodation Scale (FAS), group CBT for OCD and numerous publications and clinical research in these areas. She is also a member of the Scientific and Clinical Advisory Board of the IOCDF as well as a faculty member for the IOCDF’s Behavior Therapy Training Institute.
Kyle Williams, MD, is the director of the Behavior and Immunology Clinic in the OCD and Related Disorders Program at Massachusetts General Hospital, and instructor in psychiatry at Harvard Medical School in Boston, MA. Dr. Williams’s primary clinical and research interests involve the intersection of the brain and the immune system, and in particular, the psychiatric and behavioral consequences of these interactions. He has published peer reviewed articles and book chapters on Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS), obsessive compulsive disorder (OCD), and Tourette syndrome (TS) and received grant support from the American Academy of Child and Adolescent Psychiatry (AACAP), the International OCD Foundation, and the Howard Hughes Medical Institute (HHMI). Dr. Williams is currently a co-investigator on a multisite NIMH-funded grant assessing the efficacy of Intravenous Immunoglobulin (IVIG) in the treatment of PANDAS, and is continuing work on investigating the neuronal targets of autoimmune cells in the serum of children with PANDAS and Sydenham’s Chorea.